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Identification, Testing & Diagnosis
How did you cope with your child's diagnosis?
Hi everyone. The last time I was on an ivillage message board was as a part of the 2007 expecting club and then playgroup. My son is now 4 and was diagnosed last fall with autism. It has been an emotional rollercoaster ever since. How did you cope? How are you coping now? I have buried myself in the technical stuff such as getting him the right related services but have not given myself the time to emotionally process everything. Thanks for listening.
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How did you cope with your child's diagnosis?
Hi everyone. The last time I was on an ivillage message board was as a part of the 2007 expecting club and then playgroup. My son is now 4 and was diagnosed last fall with autism. It has been an emotional rollercoaster ever since. How did you cope? How are you coping now? I have buried myself in the technical stuff such as getting him the right related services but have not given myself the time to emotionally process everything. Thanks for listening.
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I have good days and bad days. I gave myself permission to grieve the loss of a 'normal' parenting experience. This helped me quite a bit. I also re-prioritized our goals for each day. My new definition of a good day is:
there must be laughter each day
there must be love each day
there must be music each day
Everything else we take in stride. Lastly, I see a counselor that specializes in special needs parents. That helps a lot during the tough times.
Hope that helps.
Caren
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To be honest it took me several years to become comfortable with my son's diagnosis. There was a lot of pain. I spent time grieving for the son I planned on having, but didn't get. I spent too much energy mourning over the loss of false friends who abandoned me after seeing my son's behavior was so problematic. What happened next was I found new friends (all with children with special needs). It took a while for my family to accept my son, too. But as time went by and he grew and did better, learned to manage everyday activities better, I was encouraged that he would make improvements, and I adjusted my expectations to be more realistic.
I try never to compare him to other kids. I only compare him to how he did last year at the same time. Advocating for him in the schools gave me a place to direct my energy and made me feel close to him (he is not a warm, affectionate child). I learned all I could about autism, sensory integration, etc. I read a lot. I attended a support group in my area for parents like me.
It's important to take care of yourself - eat right, excercise , get plenty of rest. Strive for balance between life, school and therapy. Everyone copes at their own pace. Be gentle on yourself.
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Well, quite frankly, I was a bit shellshocked. We knew our 9 yo. had many struggles, both with school and things at home. We'd struggled for years to get her the help she needs at school, and that fight isn't over. But since her first developmental pediatrician two years ago didn't say anything about the autism surveys we filled out, we figured it wasn't an issue. It was a huge shock when this past February her neuropsychologist, after extensive testing, diagnosed her with PDD-NOS and Sensory Processing Disorder.
I spent the first few days in a bit of a fog. Finally, though, I had an epiphany. My precious little girl was the same person right that minute as she was a week earlier, before we had the diagnosis. And that realization made all the difference. Having a name for the struggles didn't suddenly make her a different person, but it did give us a direction in which to go to help her.
Caroline
I'm a Type A mom, and my husband and two precious girls have ADHD. My youngest also struggles with PDD-NOS and Sensory Processing Disorder. Visit the chaos at our house at Life, Unfocused!Caroline
I'm a Type A mom, and my husband and two precious girls have ADHD. My youngest also struggles with PDD-NOS and Sensory Processing Disorder. Visit the chaos at our house at Life, Unfocused!- Mark as New
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totally agree with caroline93! I, too, realized my son was the EXACT SAME KID as he was before the diagnosis. But what the diagnosis did was point us in the right direction. Getting the diagnosis was a relief in that when it had a name we could learn more about it and learn what to do to help.
